- 647 days ago
- About Me
MSK Advocate/USF Tampa Project Facilitator
I am in the process of starting an international awareness campaign for Medullary Sponge Kidney (MSK). I am the Facilitator of the USF Tampa project; this is a research project that I began and will be submitting to USF, to hopefully convince them to start a clinical trial for MSK patients. Through this process, it is my goal to secure funding for research and new treatment options that will benefit MSK patients worldwide. My online petition can be found here:
You can follow me on Twitter @mmaston01, and you can watch my video series about MSK on my YouTube channel - mmaston01. Please feel free to subscribe to my channel for future updates. Thank you for your support!
** If you have MSK and are searching for resources and information, please join my Facebook group "Medullary Sponge Kidney (MSK) Patients Unite", where you will also find a link to our closed support group. This group is made up of wonderfully supportive MSK patients from all over the world, and we are all ready to help you. We look forward to meeting you soon!! **
mmaston01 has not saved any links.